Week #17

Hello *waves* how are you? I know I've not posted very much but I'm quite happy not to, I'd gotten into that thing of being pressured about posting and stats and all that but since I've got home from hospital I've got a grip. I've much preferred just blogging when I feel like it without feeling like it's not good enough and it's feeling like the fun hobby it was I first began - like the good ol' days :'-) I do need to have a catch up with comments and reading blogs though!

Pretty flowers in the garden

So this week I had clinic like I mentioned before, all was well and they took some bloods to send off to the transplant clinic. I didn't mention this before but they've sent my basic details off to them just to be prepared in case my lungs are starting to pack in and I'll need to be assessed for lung transplant. This first step is absolutely nothing to panic about, all it is is I've had a crappy year of health and I've started to need home oxygen. I may get better, might stay stable like this for years and years or I am actually starting to approach end-stage CF - there's just not really a way of telling! But the transplant assessment process can take a while so just in case I do need to start all that they have the basic results already covered so they can get on with more important tests. It's just a precaution, it in no way means I need a lung transplant now or anything! I'm completely calm about it now and I don't feel I'm going down that road yet (or maybe I'm just in denial haha!) but I won't lie, it did freak me out for a few days. It's the first time the 'T' word had been mentioned and I guess it was kind of a sobering moment. I know what CF does and I've seen it take away so many beautiful people but there's always been that little voice in my head saying 'But it won't happen to me!' Stupid, but I suppose we all think we're invincible right? ;-) 

Sorry to go all deep on you there but you know I like to document all my CF going-ons! Also I had a drink for the first time in months Saturday night, just one, which is making me all chatty as I'm typing haha. Yesterday was actually really nice, me and my mum went shopping (didn't buy a thing, go meeee!) then we saw 'Amy' which was fantastic. I love Amy Winehouse's music but never really paid much attention to her as a person. I obviously remember all the newspaper stories and while I did think 'Poor girl' a lot of me used to just write her off, like she was doing it all herself and that. But this really changed my perception of her and I just feel so sad and sorry for everything that happened. So heartbreaking but now when I think of her I'll be remembering that fresh faced girl she used to be and not the beehived wreck she became. Whether you were a fan of her music or not, I think it's a must see.

I feel like I've this post is a right downer haha but I've had a happy week, honest!! Me and my mum also had Five Guys yesterday and went to the pub after the pictures for a drink and played and lost on the pub quiz machine. Then I also saw my bubba niece Florrie, she waved and it was the cutest thing ever! I can't believe she's 6 months old, it's going quick but I think it's exciting that she's getting older. I know it's ages yet but I cannot wait til she can talk and we can know the thoughts in her brain! To have little conversations with Florrie is something I really look forward to but for now we're loving all the bubba cuddles!

How's your week been? Have you seen 'Amy'? Tell me your favourite thing you've done this week!



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25 comments:

  1. I really want to watch the film Amy! It's on my list of things to do this week. Hope you're feeling better soon. It's inspiring how strong you seem about the possibility of a transplant!

    My favorite thing i've done this week was going to an awards do with work- and getting to wear a pretty dress! So much fun.

    Tanesha x

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  2. I'm definitely with you on the whole feeling pressured to post regularly, so I've stopped too. I think I'm beginning to forget why I started blogging in the first place so I'm glad you're taking a step back as well :)

    Also, I don't think this is a downer post, it's honest and that's what I love about you! Hopefully everything will be fine and you'll be here for years though :) xxx

    Sam // Samantha Betteridge

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  3. I hope everything starts looking up again Josie and that you start to feel better. Nothing too exciting in my world this week I'm afraid.

    Lizzie Dripping

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  4. I can imagine hearing the T word is scary and daunting, but you are so incredibly strong and when/if (you might be invincible, you never know!) that time comes, you will get through it. Until then, you can carry on going to the pub with your mum, and going shopping, but you are allowed to actually buy stuff!
    I hope this is a good week for you xx


    Hayley-Eszti | www.hayleyeszti.com

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  5. I'm really glad that you've had a happy week J! You're such a boss and always an inspiration - hope ya know that! <3 xxx

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  6. Ah Josie, sometimes these breaks are just needed! We all need to remember it is just a bit of fun.

    I hope you start to feel a bit better and they work out what's going on. You're such an inspirational person, I like to think of you as invincible as well. ;)

    You've made me feel like I need to watch that film! I liked her music but never really cared much for her as a person. It was playing at Glastonbury but I couldn't be bothered to go and see it. I'll make it happen.


    Tara xo

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  7. Haven't seen Amy yet, but I want to now! And Josie, this post is a not a downer at all. In fact, your honest CF posts always put things in perspective. You're seriously brave in how you're dealing with everything, and we all admire you for that.

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  8. I've felt a little lost with my posting for a while - just not feeling it! It's so inspiring to hear about how you're dealing with CF head on and not afraid of it. Totally high-fiving through the screen! haha x

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  9. I'm pretty sure you might be invincible you know, you're certainly one of the strongest people I know! xx

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  10. I hope you get to see it, it was fantastic. Thank you!


    That sounds like loads of fun, I never get to dress up haha! x

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  11. We always seem to do things like this together Sam haha! Great minds I say ;) Thank you lovely x

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  12. Thank you so much! I hope you could enjoy the sun at least :) x

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  13. Thank you so much lovely girl! I was so sorry to read about your crappy weekend, I hope you get to rest lots and are being well looked after! x

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  14. Thank you so much Carly! It's most definitely people like you that help keep me positive though x

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  15. Thank you so much Tara! I think Sam has to take you and buy all the popcorn because he went Jurassic World without you haha x

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  16. It completely changed my perspective of not only Amy but people with addictions and depression in general! Thank you so much Emmy x

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  17. Maybe it's this heat making us less productive too haha! Thank you so much Rhiannon x

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  18. You're so sweet, thank you Jennie x

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  19. I felt the exact same way a few months back, a break to clear your head is really helpful.


    mycluelessmind.blogpost.co.uk

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  20. I've started only posting when I really want to now - it does take away so much of the pressure!
    It's always so inspiring the way to talk about CF so frankly, it puts everything into perspective. Have more happy weeks like these and you'll be smashing it haha! xx

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  21. I really want to see Amy - you've completely sold it to me. I hope you start to feel better this week - keep your chin up chicken! Lovely to hear that you're trying to blog like the 'good old days' again - me too. Too much focus on figures makes it so tedious. Love sophie xx

    www.fashionnomads.com

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  22. Samantha Mariko14 July 2015 at 06:19

    You are so brave for going through all that you are and still exuding a positive vibes in your blog entries. hope the process goes well!
    www.samanthamariko.com

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  23. I think it really is so important that you document your CF struggles rather than keep it to yourself. You never know it could really help some one x

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  24. Everytime I read about your outlook towards CF, I always think of how brave you are. I hope you will feel much better Josie! Xx

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  25. Glad that you are home. Totally right about not putting additional pressure on and enjoying blogging doing it when you can. We all get in this cycle of I must post and it all becomes a stress I have been doing this lately and the fun goes out.

    Wise to be preparing even if it is a precaution for a transplant. A friend had kidney dialysis for years and when they mentioned transplants she felt people were giving up, but she is now the other side of having it done and says she feels brand new. Going on holiday she can go where she wants she doesn't have to organise hospitals, she doesn't have to do hours of medication at home through dialysis. I know it is different for everyone. But what she considered would be negative and awful turned out to be what she had wanted for years a life that she could live not being poorly.

    Sending you lots of love

    Lucy x

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