Week #19

Helloooo! How are you doing? This week was goooood, for the first time in ages I felt well enough to actually do stuff. It was only a trip round the shops (bought quite a bit, haul coming soon!) and also last night I went for drinks for a family friend's do. Little things to most people but I've just been housebound or stuck in hospital so it was good to get out because I'm going a lil' crazy.

Sick day with Freddy - he's been unwell for months too :(


Take this story for instance. The other week this wood pigeon came into our house and I know it's definitely the same one that's always looking at us through the patio doors, it's like the robot dog in Wallace and Gromit. Then Freddydog went out to the garden on Friday and it chased him back inside, why is this bird so brave? It hangs around with this other wood pigeon and a dove, this dove is always chasing this magpie and I just don't know what's going on with this little gang.

And that there is proof that I spend too much time indoors.

I was back at the CF clinic this week and before I tell you about that I wanna quickly clear something up. In my last post I told you something that my doctor said and said something about her being Regina George but I was joking about that, she's not horrible at all - she's very blunt but she's never offended me and she always means well. I just think she's funny but I guess people who are touchy would get annoyed. But no, she's a brilliant doctor I think and she's actually right when she said I looked bleurgh because I'm definitely not back to where I need to be so I may need IVs next week.

There was also a little more talk about transplant, they just needed my permission to send off all my stuff to Harefield (the transplant hospital) and now I just need to wait for an appointment to go there for tests. As I said before, they may just say 'Get lost, you're too healthy for transplant' and that's what I'm hoping for but it still hasn't stopped me from having a few panicky moments. But then I just shopped and it cheered me up haha!

On the same day as CF clinic there was a documentary on BBC2 about Great Ormond Street and this week focused on children needing lung transplants, three of whom had cystic fibrosis. One of the surgeons performing the op said something like 'Imagine having to make a concious effort to breathe' and that people take it for granted being able to just take a breath without thinking about it - he's summed up CF quite well I think! It was so heartbreaking and the courage these kids have blew me away. It was a real eye opener and was such an insight into the whole process as usually you just see someone before the transplant where they're really ill and then after when they're much healthier. You don't see the op, the tough recovery or hear about the risks, it shows how complicated the whole thing actually is. But on the other hand it also shows what an incredible difference it makes to peoples lives. You can catch up with the programme here and I really recommend you watch it - if you've been on the fence about organ donation if this doesn't make you sign up to the register I don't know what will. It's a very upsetting and emotional programme but this is the reality for thousands of people and is why organ donation is so important. Also, it shows how bloody hardworking and amazing NHS staff are, Jeremy Hunt just infuriates me.

Anyway I hope you've had a good week! I'd love to know your thoughts on organ donation!



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16 comments:

  1. daisychaindream26 July 2015 at 14:01

    Fingers crossed on the transplant front Josie xxx

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  2. I hope everything goes okay for you!

    fixmeinfortyfivex.blogspot.co.uk - A Beauty & Lifestyle Blog

    xx

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  3. Hope all goes well Josie. will have to watch that programme. Sounds heartbreaking but it's so good that you continue to raise awareness x

    www.ohjanuary.blogspot.co.uk

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  4. Hahah I laughed at the bird story! That's the kind of thing I like to notice :P I hope you and Freddydog feel better soon :( I am actually not sure if I signed up to be an organ donor, I remember starting to, but I'm sure you get an organ donor card... and I don't so I guess not! I'm giving blood for the first time in September though! xo

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  5. I signed up to be an organ donor about a year ago and I just think it's such a great thing to do. It sounds a bit blunt but, I'm not exactly going to need my organs when I'm dead am I!? so if someone else can benefit, then I'm all for it!

    Also, can't wait for your haul - we all love a good haul don't we?! xxx

    Sam // Samantha Betteridge

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  6. No offense to anyone, but I think not being an organ donor is just selfish. You're dead. You don't need them. Love your lil dog's face in that photo.

    Tegan xx - Permanent Procrastination

    Btw check out my sweet Lightbox Giveaway if you haven’t already!

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  7. Gosh it really makes me realise how much I take things for granted sometimes! I'm all for organ donation, you can save lives and you don't need them anymore so why not? All the best <3 <3 <3

    Andini xx | Adventures of an Anglophile

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  8. Hugs to you and Freddy, Josie XOXO And it's true...we take these little things for granted sometimes. Reading about you're going through really does put stuff in perspective, and that's why I love your posts.


    PS Have been an organ donor since I was legally allowed to do so. My dad had a kidney transplant before he died of cancer so I totally understand how important it is.

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  9. I'm glad you're feeling a bit better in general Josie.

    Lizzie's Daily Blog

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  10. Hope everything comes out okay on the test front. The kids and doctors at places like GOSH are so brave and inspiring-Hunt is totally the worst for seeming not to realise how hard healthcare professionals work!

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  11. Just signing up to be an organ donor now. It's scary to think about, but it's definitely for the best! So glad you're feeling better this week and I'm excited to see your haul! xxx

    ANNA HOPELESS

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  12. get well soon. your dog looks so cute :)
    xx
    http://allornothing-blog.blogspot.co.uk/

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  13. I've always thought that I would like to be a donor, but I'm not sure how I would feel about receiving an organ. I am a registered organ donor at home in Canada, but not in the UK, which is where I've lived for the past 2 years. I guess I've never thought about it over here. I wonder what would happen if someone knew I was a donor in Canada, but there wasn't anything on record in England? Hmmm.

    Aisling | aisybee.

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  14. I'm really hoping you get good news and that everything is okay! I agree, NHS staff work so hard and don't really get the recognition they deserve. Jeremy Hunt is a freaking rude moron who I can't stand! Talking of animals, there's a little black cat that lives around near my flat and it's so cute because whenever I go to pet it, it always jumps up to me :) xxx

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  15. i read your bird story and then had to re-read because it was just so lol! even though the thought of being an organ donor makes me go 'eeeek' in my head, it's definitely the right thing to do/ i almost think it should be the given and then people can opt out as opposed to opting in? i think the problem is, not enough people know the importance of being an organ donor, but then in times of need - who would they look too? all the nice people that have thought about donating their organs! i hope you aren't too worried about the possibility of a transplant, as you said - best thing to do is shop now, think transplants later! cuddles to freddy because I'm sad he's been poorly for a while too! xx


    jordaneyasmin.blogspot.co.uk

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  16. Organ donation is really important as it gives hope and actually makes a big difference to the receiver. On another note, I'm glad you are starting to feel better Josie. I hope your health will continue to improve! Xx

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