Week #7

Happy Valentine's Day to you! I'm spending the day spooning...a big tub of ice cream. Not in a feeling sorry for myself way though, it's a pretty ideal way to spend a Sunday, no?  Hope you're feeling the love, whether you're spending the day with your special someone, your best mates, your family or on your own having a Netflix marathon. Today I'm going to be very cheeky and ask you to share the love...

See what's happening is my lovely cousins and another lovely lady (who I've only ever met briefly, once) are walking the London 2 Brighton Challenge in May for the Cystic Fibrosis Trust - that's 100km or about 62 miles. I know, isn't that insane? I'm so touched that they're doing this, it's the sweetest thing ever even though I think they're crazy. My cousins did a walk for CF before that was I think 26 miles but they got lost so ended up doing 32 miles haha (just don't tell them I told you!) and that was hard enough so it's so amazing that they're pushing themselves even more to help raise vital funds for the charity that helps so many people with CF and their families - from helping a newly diagnosed baby and their family to funding research towards that all important cure, the CF Trust is just incredible and I'd be lost without them.

And this is an exciting time for CF - there are better treatments being found meaning that people can experience a better and longer quality of life, but still on average two young lives are lost each week due to the illness. It feels like every week I'm hearing about someone else passing away and it's just soul destroying seeing the effects of this evil illness. I hope at least there will be something one day that makes a person with CF's quality and length of life the same as the average persons. Not the life of hours of nebulisers and physio and countless pills and iv antibiotics, not the constant worry that every time you get a chest infection you're losing more precious lung function permanently or the uncertainty of the next day, never mind the future. Not having to go through scary things like lung transplants, which is a wonderful thing but not the straightforward cure people think it is. Basically, it'd obviously be much better if our health didn't reach that point where our lungs are failing us!

"Not being able to breathe takes the wind out of your sails and robs you of the simplest things. It's not easy when your lungs have one purpose and they fail at doing that." (picture and quote via Facebook, not sure of original source!)

I don't really talk about it that much as it's not something I like to dwell on but living with CF can be bloody terrifying, not only for me but for my family and friends too. It's just insidious the way it seems to have slowly chipped away at my health throughout the years and has now progressed over the past year to the point where if I don't get a lung transplant I will die. I don't even know if I'm able to go on the list yet and waiting to find out is just so stressful and horrible. I hope more than anything that one day people won't have to go through the same which is why it's so important to raise the money towards finding a cure one day.

Annnnd this is where you come in! If it's at all possible it would mean the absolute world if you could sponsor 'The Blister Sisters' (named after the damage done to their poor feet the last time haha!) for the walk they're doing - even £1 would be incredible! I know it's a bit cheeky to ask but as I'm sure you'll agree it's going to a fabulous charity and it's all for an excellent cause. If you're feeling charitable the link is here - thank you so much!!

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