CF | Hospital Stay #2

Hi! How are you? So I didn't blog for a bit because I was in hospital for a couple of weeks, thanks to CF being a massive bean. I went to the CF Clinic on thinking I'd need IVs and a few days in but it kind of ended up being a bit more complicated!

So I got to Mulberry Ward (how very me!) on Tuesday 28th October and my oxygen levels were low at 88 (95-100 is considered the 'normal' range for people, mine are usually about 93) and as they put you on oxygen if you go below 90 I had to use this machine 24/7:

This is different to the usual oxygen as it's humidified, so it was quite steamy and worked wonders at clearing my chest and sinuses so it did make it easier to breathe. However it's not the nicest thing as it's really hot and noisy and as it uses water to create the steam it kept squirting up into my nose, usually when I was sleeping! It wasn't portable either so I had to stay in bed. I was put on IVs and as the week went on I just didn't really show any improvement and felt like I was getting weaker. I needed help to do everything especially when it came to getting my medicines but apart from IVs I had to do it all pretty much myself, like I'd have to take off the oxygen to get my meds and set them up which was really tiring and difficult. I wasn't getting the care I needed on Mulberry, I needed more help and my IVs were never on time which stressed me out a lot but this isn't the nurses fault, they were just so short staffed. The kind of final straw came on Sunday when something was up with the humidified oxygen and the nurses didn't know what to do so they put me on an oxygen canister which then run out but I was too unwell to notice so my levels dropped to 65 and I turned blue! So at 4AM Tuesday morning (fab timing that was...) a doctor came into my room and told me I was going to the High Dependency Unit because the amount of oxygen I was on was a little bit higher than Mulberry Ward was used to dealing with and that the care on HDU was better so they thought I'd improve faster there. But there was no side rooms there (CF patients need to have their own rooms because of risk of cross infection) so I went to the Intensive Care Unit where I was wired up to all sorts:

So I was still bed bound but in the ICU it's one nurse per patient so I was very well looked after and got to rest lots. The only thing I didn't like there was when they put an arterial line in my wrist, I'm usually not a squeamish person and I don't mind needles but this was quite gross! They stitched it into the palm of my hand and it just freaked me out but after two days they had to take it out anyway because it was painful and wasn't working. On Thursday a bed became available on HDU and I got to take off most of the wires which was good! I was still stuck in bed though, especially as I had to have my overnight feed every day from 3pm to 8am. I got a lot better there and was able to go back on regular oxygen rather than the heated stuff, by Wednesday I was off it all together and was well enough to go back to Mulberry Ward by Tuesday which I was happy about because for a week I'd been stuck in rooms with no windows so I was feeling a bit stir crazy! But that was a good sign because before I'd felt too ill to even care about being stuck in bed. 

Today I got to go home and I'm so happy to be back with my Freddydog, I was gone for 2 and half weeks which is the longest I've ever not seen him! But he's of course ignoring me for leaving him for so long. To be honest I feel quite overwhelmed now, I was stuck in my room the entire time so coming outside was weird. It could've been a lot worse I know but I feel a bit emotionally exhausted now (doesn't that sound silly?) But I think now I'm back with my family, my own bed and food and no more constantly being poked and prodded by people (I will not miss those daily 7:30am blood tests!)  I'll be fine soon. I just need to do another week of home IVs and then I'm good to go! Definitely planning a trip to Oxford Street once I'm better.

Thank you to everyone who messaged me, it was so lovely of you and really lifted my spirits! Hope you're well and have a fab weekend!

Read more about CF here and here.


  1. I AM SO PLEASED YOU ARE HOME. It sounds like you have had such a rough 2 and a half weeks, so I'm sure all you have wanted is your own home and bed! Obviously, still take it easy and I think it's acceptable to do a bit of online shopping now to cheer yourself up. You say you pull the CF card once a year? Well, I reckon you can pull it out again now ;)
    Lots of love and I'm so glad you've back :) xxxxx

  2. I'm really happy that you're home now, back with Freddy and can hopefully have some fun soon :) <3 xxx

  3. Poor you, sounds like you've had a really rough couple of weeks. I hope you feel better really soon, you definitely deserve a shopping trip xx

    Ioanna |

  4. Feel better soon lovely. You've been through the wringer. xxx

  5. Aw Josie, how rough on you. So sorry you had to go through such an ordeal. It's weird... one is so grateful for a hospital to go to, but it does make you feel worse psychologically being there and being dependent on people who are overwhelmed or disinterested. You're a hero for getting through it and speaking up for yourself while struggling with your symptoms. I wish you all the best and no hospital visits for a good long while!

  6. Oh Josie! (((hugs)))) What an ordeal, but so glad that you are feeling way better. Sending you all the love from Canada.

  7. So happy that you are at home now :)

    I'm running a "Naked pallet" giveaway, if you're interested, check this link:
    little taste of heaven

  8. Ahhh peach, you're home!! Hope you're back to your usual self soon : )

    PS. 10 fashion points for hitting the Mulberry ward ; )


  9. God this sounds like a bloody nightmare Josie! So glad to hear you're home with Freddy again and hopefully there'll be no more hospital stays any time soon! xx

  10. What a nightmare! Sometimes I love the NHS but other times it drives me crazy x

  11. I am glad you are home nothing like home comforts to raise the spirits. Hopefully all the poking and prodding will mean that you will have a well and happy Christmas. When you are better Lucy, Katie and me will take you out for lunch and a big bit giant bit of cake Lucy x

  12. I'm so glad you're back at home and feeling better, you definitely deserve a shopping trip! xx


  13. I'm so sorry to hear you've been so unwell! Glad they put you in ICU though if you weren't getting the care you need.

    Hope you get plenty of rest and chill out time now you're out and are feeling much better!

    I'm sure your pup will forgive you soon :)

    Corinne x

  14. So happy that you're now home Josie! Bet Freddy missed you like crazy :) Get lots of rest - sounds like you've had a right old week! And we look forward to seeing you back to blogging! xxx

  15. What a journey. Its good to be back home and take care :)


  16. So pleased you're home lovely lady! <3 x

  17. Awww Josie I'm so happy you're back and that you're ok :) I completely feel for you and hope you feel better soon! Lucy x

  18. I couldn't be happier that you are home lovely girl, but I'm so, so sorry you had to go through this horrible ordeal in the first place. It sounds like such a nightmare, I can't even imagine! :/ How frightening Sunday must have been. I'm so glad you were moved to ICU and cared for like you deserved! What I love is your attitude, so upbeat and strong. Most of us, I'm sure, wouldn't cope half as well as you do by a mile (I know I wouldn't). It sounds perfectly normal for you to feel emotionally exhausted, especially as you were stuck in a windowless room for so long. So glad you are at home now and able to recover, make sure you pack in a wondrous trip to Oxford Street as soon as you possibly can. Well. Bloody. Deserved! Just know I'm always here if you need a friend, a chat or a rant. Anytime at all. All my love to you Josie <3

    ps. And Mulberry, so very you of course ;)

    Sophie | soinspo xo

  19. Chantele Cross-Jones22 November 2014 at 01:57

    Aww you poor thing, hope your feeling better!

    Two Hearts One Roof


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