I had an appointment at the CF clinic on Tuesday, so I thought I'd write a bit about it to give an idea of what a typical hospital visit is like. Brace yourself, because this might be a long 'un!

Firstly, I get weighed. A CFer has to keep weight up because it helps fight chest infections and since we tend to lose weight quickly it provides reserves for when we're ill and have no appetite. I have to take tablets called Creon (not crayons!) for everything that I eat in order to keep the calories that I'm consuming. I also get to eat as much crap as I want...I like to think of this as a perk of CF haha. But I have been known to go in dressed like this to seem heavier.

Ok, maybe not quite as extreme as this, but I can now fit three pairs of leggings under my jeans. It's because I get nagged so much about my weight, but I suppose being moaned at to eat more chocolate isn't the worst thing in the world!

Then I have a lung function test. This is basically a machine where you put a mouthpiece in your mouth (sorry that's a bit obvs, where else would it go!) and take a massive breath in. Then you breathe out as hard and fast as you can. Two measurements are taken as you breathe out: an FEV1 and an FVC. The FEV1 measures the amount of air you breathe out the split second you blow and is the most important one. The FVC  measures the total amount of air you are able to breathe out. This time my FEV1 was 50%, which had gone up so I was very happy indeed! It's a direct result from putting on weight, so I shall be stuffing myself this Christmas. I still get breathless very easily though; to put it into perspective, the average healthy, non-smoker has an FEV1 of around 75-80%. 

Then I see the dietician and doctor. They were happy, my Mum was happy and I was happy. So I've treated myself quite a lot this week for being a good patient, maybe I'll show you soon. But there won't be any outfit posts for a few days due to an unfortunate incident late last night involving me, a pair of scissors and my fringe (when will I learn??)


  1. Hope everything is good!
    Laur x

  2. I love your blog! I followed you! Please check out my blog and follow me? Thanks so much!


  3. Ah yay, that sounds good! Glad everyone's happy happy :)

    Rosie x

  4. Glad everything is well & everyone's happy :) I personally don't mind visiting the doctor - I think the wait is definitely the worst though lol.

  5. Thanks for sharing this, glad you're all happy :)
    I'm the exact same with my fringe, always think it's clever before but not so wise after haha

    Laura x

  6. Great blog and photos! I love it :)

  7. Glad you're well :)
    Eating more chocolate is definitely never a bad thing! Hehe

  8. I wish I was told to eat more chocolate! I have to say that I am terrified of the doctors so you are practically the bravest girl in my eyes! Also love the photo of Joey!

    Dinx @ Lovely in Random xoxo

  9. I love joey pics, nice post!!
    take a look on my blog and if you like we can follow each other? (also on facebook!) have a wonderful day… keep in touch

  10. that's great news!! And if you get to eat more chocolate, then that's better news! I hope you get to treat yourself this week, it's xmas after all!!

    Thanks for the comment on my blog!

  11. Hey,

    I just started following - blogging novice!
    Love the concept of your blog; it's great to see someone who blogs about something worthwhile as well as the fun stuff!
    I look forward to reading more posts from you...

    H x

  12. interesting post!!
    I follow u, follow me please
    And I ask you if follow me also here because my google give me a problems :((


    My Free Choice

    There is Ceramic bow-tie Giveaway on my blog I wait u!

  13. just started reading your blog and you sound very brave, glad to hear doing well and yes eat lots of chocolate!
    my cousin has cf but she doesn't eat at all now she's fed through tube all the time.

  14. I'm glad your doing well! :)
    - Olivia xx

  15. Really glad to read that the doctor's appointment went well. I so admire the fact you are keeping a blog about CF, it definitely helps to educate others like myself more about the condition!

  16. I like your post so much! So glad that you're happy!
    Take a look and if you want we can follow each others: Cosa mi metto???

  17. What is CF? I love friends, that episode was funny with Joey!
    Shasie of Live Life in Style


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