A Bit More About Me

I suppose I should say a little more about me and my CF, since everyone's experience is so different. I was diagnosed at 2, after my mum was told again and again there was nothing wrong with me. This seems to be quite a common story, things are so much better nowadays, they're more on top of these things! My earliest memory is being in hospital when I was about 3 or 4 to get a portacath fitted. This is in my right side and makes IVs so much easier so I love it. I also had a gastostromy tube put in my stomach, I have less love for that but I'll explain another day.

Other than the odd hospital stay over the years, I haven't had to be admitted that much at all. I'm so lucky because my Mum learned how to do IVs so we could do them at home, something I'm so grateful for. I've since learned how to do them myself, which has been brilliant because it means I have so much more independence. I go on IVs every three months or more if I'm ill, but I'll write about that when I'm actually on them. When I don't have them, I really don't want to be talking about them because to me they're the most boring thing in the world after Adele (I'm sorry, I know everyone loves her but her music makes me wanna sleep!)

I think other than having IVs, CF didn't affect me too much when I was little, I don't remember missing that much school. I think it was when I was around 13/14 that I started to miss school loads, which was down to a whole mixture of things, including having an operation for a curved spine which I'll talk about more later (so much to look forward too haha!) Since then, I don't think I've been the same since, even though compared to a lot of people with CF I think I'm fairly healthy, despite frequent chest infections. Can't remember my most recent lung function off the top of my head (useless I know!) but I think it's around the 50's. When I'm ill this goes down to the 40's. 

I won't lie, I'm not too good at the exercising part, I'm a bit of a yo-yo exerciser. One month I'll be really good then the next I'll be absolutely rubbish. I do take my medication though! Click on the treatment tab above if you wanna know what I take, it's kind of too long for me to go through again.

I think that will do for now, this has been a bit of an overly long post. I'm just putting off that essay still!




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2 comments:

  1. heya, thanks or your lovely comment, good luck with your blog babe :] xxx

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  2. I hope that you are as healthy as you can be! CF must be incredibly hard to deal with, but you seem soo headstrong & positive. Thank you for your comment on my blog, your blog is lovely. Keep well and Take Care of yourself Hun!! G ♥ :).

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