CF WEEK

I should have done a post on this before, but because I didn't have internet I, err, kind of forgot. The 29th April to the 5th May has been Cystic Fibrosis Week, which aims to raise awareness and money for CF. But ya know, I suppose every week is CF Week on this blog! 
For more information, you can check out the CF Trust's very own blog here. There's also tonnes of CF blogs out there written by people who are a whole lot better at explaining CF than me! They're also good because they all show different perspectives of living with CF, as no two Cfers are the same. Here's a couple of my favourites:


Victoria
Gemma
Kirstie (You may have seen her BBC3 Documentary 'Love on the Transplant List'!


You can also find more info on the CF Week website.
And here's CF in a nutshell in case you've forgotten ;)

• Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
• Cystic Fibrosis is caused by a faulty gene that controls the movement of salt and water in and out of the cells within the body.
• Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
• Over 9,000 people in the UK have Cystic Fibrosis.
• Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis – around 1 in 25 of the population.
• If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
• Over 95% of the UK CF population is Caucasian, but Cystic Fibrosis affects many ethnic groups.
• Each week, five babies are born with Cystic Fibrosis – one in every 2,500 births.
• Each week, two young lives are lost to Cystic Fibrosis.
• Currently half of the CF population will live past 41 years of age, and improvements in treatments mean a baby born today is expected to live even longer.

Josie xx