CF | Allergic Reaction

Being pushed around and my fry up at the cafe...not a bad way to kill time whilst waiting for the pharmacy!

So you know the other day when I was saying how I'd caught some virus? It turns out it was actually an allergic reaction to Septrin, a medicine I started taking nearly two weeks ago when I was getting that unexplained breathlessness. It's a drug I've had many times before but for some reason now my body has decided it doesn't like it which kind of sucks because that's now yet another antibiotic I'm resistant to which makes treating chest infections and other CF crappiness a little harder because I don't have as many options. It's kind of interesting though, I didn't start getting a reaction to the meds until after a week of taking them when usually an allergic reaction will happen straight away. It's because when I started them I also began a course of steroids and they are used to treat allergies which is why I had no symptoms at first because they were stopping them from happening. It was only when that course of steroids finished I started to get swollen joints and blotchy skin, it went on for almost a week until yesterday it was so bad I couldn't walk at all which explains why I'm in the wheelchair. My ankle was absolutely gross, it went so fat I couldn't even put my shoe on! You know God help me if ever I do end up in a wheelchair because my Mum and stepdad were having way too much fun...they were giving me wheelies down the road when we went to the cafe while my medicines where getting ready in pharmacy and I was so scared haha. I can walk again now though, I'm back on steroids and I'm feeling much better which is good because the pain had me crying like a baby...so embarrassing!

It's a bit of a bummer that I can't use Septrin any more (I loved it, it used to make me feel so much better!) but there was some good news because I am now Miss Fatty Boom Boom. Well, that's not true but I am the heaviest I have ever been which is good because with CF there's evidence to suggest a higher weight equals a higher lung function. This is certainly true with me, the other day I woke up and felt so good I forgot to do a Salbutamol nebuliser (the one I do up to 4 times a day otherwise I can't really breathe) because I could breathe so well I thought I'd already done it! I went out that day walking round the shops and it was only when I got home I realised I hadn't done it. It's a big deal because usually I wake up first thing and have to do it before I do anything else because I just can't breathe...the last time I was able to function properly without doing it first thing was probably back when I was like 12! I'm sure this is because I've gained weight, so I'm happy. Obviously I still have to do all the nebs but it's nice to wake up in the morning not gasping for air! The only downside is a lot of my clothes don't fit but there's no better excuse to go shopping (except I keep buying shoes instead of things I need, like new jeans!)

Josie x

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