CF | Allergic Reaction

Being pushed around and my fry up at the cafe...not a bad way to kill time whilst waiting for the pharmacy!

So you know the other day when I was saying how I'd caught some virus? It turns out it was actually an allergic reaction to Septrin, a medicine I started taking nearly two weeks ago when I was getting that unexplained breathlessness. It's a drug I've had many times before but for some reason now my body has decided it doesn't like it which kind of sucks because that's now yet another antibiotic I'm resistant to which makes treating chest infections and other CF crappiness a little harder because I don't have as many options. It's kind of interesting though, I didn't start getting a reaction to the meds until after a week of taking them when usually an allergic reaction will happen straight away. It's because when I started them I also began a course of steroids and they are used to treat allergies which is why I had no symptoms at first because they were stopping them from happening. It was only when that course of steroids finished I started to get swollen joints and blotchy skin, it went on for almost a week until yesterday it was so bad I couldn't walk at all which explains why I'm in the wheelchair. My ankle was absolutely gross, it went so fat I couldn't even put my shoe on! You know God help me if ever I do end up in a wheelchair because my Mum and stepdad were having way too much fun...they were giving me wheelies down the road when we went to the cafe while my medicines where getting ready in pharmacy and I was so scared haha. I can walk again now though, I'm back on steroids and I'm feeling much better which is good because the pain had me crying like a baby...so embarrassing!

It's a bit of a bummer that I can't use Septrin any more (I loved it, it used to make me feel so much better!) but there was some good news because I am now Miss Fatty Boom Boom. Well, that's not true but I am the heaviest I have ever been which is good because with CF there's evidence to suggest a higher weight equals a higher lung function. This is certainly true with me, the other day I woke up and felt so good I forgot to do a Salbutamol nebuliser (the one I do up to 4 times a day otherwise I can't really breathe) because I could breathe so well I thought I'd already done it! I went out that day walking round the shops and it was only when I got home I realised I hadn't done it. It's a big deal because usually I wake up first thing and have to do it before I do anything else because I just can't breathe...the last time I was able to function properly without doing it first thing was probably back when I was like 12! I'm sure this is because I've gained weight, so I'm happy. Obviously I still have to do all the nebs but it's nice to wake up in the morning not gasping for air! The only downside is a lot of my clothes don't fit but there's no better excuse to go shopping (except I keep buying shoes instead of things I need, like new jeans!)

Josie x




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25 comments:

  1. Sorry to hear about the allergic reaction, but that's great news about gaining weight! Well done you!
    Gold Dust
    x

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  2. Yay for the weight gain! The allergic reaction sounds horrible, I had bad side effects to anti-biotics over Christmas (basically like I had the flu) and it looks like I'll have to take another round of them soon which I'm dreading - I don't have time for side effects haha! I hope things keep looking up for you. x

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  3. Josie you are such a trooper! I'm glad you're feeling better now, bless your rents for having a bit of fun wheeling you around haha. The weight gain is awesome, keep up the good work! Sucks you can't use that antibiotic anymore but hopefully they'll find something else which will help you. Go celebrate your new higher lung function with a shopping spree! ;)

    Tara xo

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  4. Oh, all the things you have to go through every day, darling. Glad to hear about the weight, but really sorry about your body's sudden reaction to the meds. Take care! x

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  5. Hope your allergy symptoms clear up soon <3 congrats on the weight gain and lungs feeling happier x

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  6. Oh man, sorry to hear you've had an allergic reaction! The wheelchair looks like a bit of fun though, and it's good that you are seeing the positive ;) It's also lovely to hear about the weight gain :) I think this definitely means a shopping trip.. or two.. or three ;) xxx

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  7. I'd so glad you're gaining weight if it means that you're getting healthier. That's such good news, not least because of all the new clothes you treat yourself too!
    P.S. How can you look SO glamorous in a wheelchair?? I know that after my surgery when I was in a wheelchair for a bit I didn't look half as good! xx

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  8. Josie!!! These things always happen to you!!! That is gutting about the septrin :-( they better get inventing new medicines just for you. I hope you enjoyed your wheelies! Haha. That's fantastic news about missing your neb! Well not great you missed it... you know what I mean :-) Go treat yourself to new shoes... who needs clothes that fits anyway? xxxx

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  9. Sorry to hear you've been poorly girl <3 But i'm so happy about your weight gain! Hope you feel better

    IN MY SUNDAY BEST BLOG

    Sade xo

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  10. Hope you're feeling better soon sweetpea xx

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  11. Hope you feel better soon! That fry up looks pretty tempting....

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  12. Aw no, such a pity about the allergies to the medication, I am glad that it could be replaced though. Weight gain is a good thing Josie, enjoy those carbs and stock up on sweet eats. Feel better darling..hugs X

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  13. Awww no the allergic reaction sucks but I'm so happy for you that you're breathing/lung functionality is slightly better :) definitely worth treating yourself to make up for it all and that fry up was definitely a good start!
    xx

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  14. oh allergic reactions are the worst although yours sounds a hell of a lot worse than what i deal with! I wanted to ask why you had one shoe on! hope you're feeling better anyway! weight gain is always good! i'm so glad i'm not on the watching list that my dr thought i should be on! xxx

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  15. So so sorry to read about the allergic reaction, Josie.:( But yay on the weight gain. I know how it's been an uphill battle for you. And you know, now with the weight gain, it's reason to buy more clothes:D

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  16. Allergies are so annoying, but yay for the weight gain! Perfect excuse to go shopping :) xx

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  17. Ahh developing allergic reactions to medicine (especially ones that you were fine with before) is always an unexpected bummer. My immune system was so low after my digestive surgery two years ago that for a while I was developing allergic reactions to so many things. I'm sure you will find something even better though, even though change can be a bit difficult. I'm so happy to hear about the weight gain, keep up being such an inspiring trooper! xx

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  18. Oh god this sucks. I love that your parents were doing wheelies with you, I can just imagine it now! haha so happy with the weight gain and your breathing, hopefully things are looking up now! xxx

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  19. Your family sound like the best! The wheelies must've cheered you up! :) Congrats on the weight gain and I hope you feel loads better soon. x x x
    Just Me Leah

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  20. Oh man, isn't that weird how allergic reactions just sort of build on you? That's what happens, though. Sometimes just taking it over and over makes your body do all crazy sorts of things. Happened to me with wheat!

    Good to hear that you're okay, though, and yay for weight gain!

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  21. Oh my gosh Josie! Sounds like you've totally in been in the wars recently...so glad you now know what was making you feel like poop, even if it means you have to re-jig all your meds. Your Mum and Dad sound like the best hahaha. Sending good health vibes your way, Daisy xxx

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  22. I don't think I've ever seen anyone rock a wheelchair like that! Hope you're feeling better soon xxx

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  23. Was so sorry to hear about all you went through but am so glad you're better now and you are looking extremely stylish in the first pic, am sure not many ladies could look so gorge in such agony but shows you are one brave beaut! Haha, love the story about your Mum and Stepdad doing the wheelies hehe.

    Also that fry up.. nom! ;-)

    Sophie xox

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  24. What an ordeal! I'm glad you've found the cause, and now you can stop worrying about what was going on. How do you manage to make even being in a wheelchair look stylish?! I actually thought you were sitting in a chair, because I was too busy noticing how lovely you look to notice the wheels. Though I did notice that you only had one slipper on and I think that's when I cottoned on haha. I'm so happy for you with your weight and feeling better for it! The lady I work with has a son (he's in his late 20s I think) who has CF. He's as inspirational as you, and he's so driven to not let CF rule his life. That plate of food looks absolutely amazing, I am so jealous and hungry right now! I have a tin of beans and sausages and some of those rolls you cook in the oven... all I need is a heap of grated cheese and I'm sorted :) my boyfriend has actually started calling me a piggy because I love food so much, but until the day it starts to show I'm eating what I want :) you deserve a big shopping splurge after what you've been through lately, you definitely deserve to treat yourself lovely xxx

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  25. Sorry to hear about the reaction and having to strike another med off your list but huge congrats on the weight gain! So glad to hear you're feeling a little better. x

    Leanne - A Slice of My Life

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