CF | My Sinus Surgery

Hey! How are you? Well whatta week! On Tuesday I finally had my long-awaited sinus surgery. I thought I'd do a big post on it as it's a fairly common procedure, especially for those with Cystic Fibrosis, so I thought it may be useful to some to read my experience! I'm going to be as honest as poss about things so if you're easily grossed out stop reading now haha.

hospital room view, lewisham
Room with a view


CF produces too much mucus in the body (ew I know, but CF ain't sexy) which is why my lungs are constantly clogged up with crap and why I get loads of chest infections. This happens to other parts of the body too, in my case my sinuses got all clogged up so I was getting constant headaches, earaches etc and as CF mucus (sorry for that word again but I can't think of another!) is so thick the normal douching and things that most people to do treat it wasn't really working. So I had Endoscopic Sinus surgery where they basically get rid of all the gunk and also a Septoplasty to straighten out my septum as it was a bit wonky! This isn't going to stop to sinus problems but now they're clear and my septum is no longer blocking airways it's hoped that the same nebulised drugs I use to treat my lungs will prevent the sinuses from getting so bad. So I have to use face masks when I do nebs and I also have a sinus neb that I use, I'll have to show you one day...it's well attractive.

So onto the op. It's normally a procedure that people have as a day thing but obviously with CF you have to be more cautious, so I went in Monday to my Mulberry Ward to start IVs as a precaution. After lots of waiting on Tuesday (I was nil by mouth and hangry) they took me down to theatre at about half 2. I wasn't nervous until then, I was trying so hard not to cry because I was thinking how snotty I get when I do and that it would be so unfair for the surgeons to have to deal with an even snottier nose. So I was like Jay from The Inbetweeners with my wobbly bottom lip haha! They attached me to all these wires and I was just about to be put under when they had to stop so I could do a pregnancy test (standard for any woman before an op) as they'd forgotten to do it on the ward, so that was a pain! When that was done they gave me this gas, after that I just remember non-stop smiling and going 'This is niiiiiiice!' It was nice.

I woke up spewing into a bowl, how lovely. During the op the anaesthetists cleared out a lot of crap from my lungs as they'd had to clear the path so to speak to put a breathing tube down my throat as I was having a bit of trouble breathing on my own so that had just shifted a lot of stuff. My lungs felt so good, it'd be great if it was so simple to just clear the lungs like that but the procedure is quite risky and can cause a lot of infections which is why it's only done if it's really necessary. They wheeled me to the High Dependency Unit where my mama was waiting and they just dosed me up on every painkiller going which was wonderful. They offered me toast but no thank you, I devoured a family sized bar of chocolate instead. I was in no pain, I just felt a bit weird because they'd stuck what was basically two tampons up my nose haha! There was no bruising or cuts which was good and the dressings from my nose where removed after a few hours.

Cystic Fibrosis Sinus Surgery
Most attractive selfie ever! To be fair though this was only like an hour after my op.

I had a good nights rest and everything was fine so the next day my doctor was happy for me to go home! All was fine until I started feeling a bit achy, by Thursday night my muscles were in so much pain I couldn't walk so I ended up in A&E for tests. I was worried because I was in too much pain to do chest physio and if I skip even one session my lungs start playing up which I really didn't want to happen after they'd had their little spring clean during surgery! A&E were amazing at looking after me, I got seen to straight away but I had to wait there in Resus all night for a bed to become available on Mulberry ward. Some kind of incident had happened so there was shouting and policemen (but this was Lewisham so it's to be expected haha) and most of the other patients were elderly and had senile dementia so they were afraid and upset which was horrible. I was in so much pain and still doped up on meds from the op and IVs so I had a panic attack, what a loser. But the A&E staff are just brilliant, they looked after everyone so well and kindly and should be paid millions. It is insane that the government keep trying to close it down, it's only just been done up and it was so busy.

lewisham a&e
In A&E, which wasn't nice but must appreciate the House of Hackney-esque screen. 

Finally at 5am I got a bed on Mulberry (they'd been told at 9pm before that they needed to prepare a bed but they didn't do it til half 4 -_-) and was in less pain. I saw loads of doctors who'd never seen me before and they were making me so mad! They were all saying I had the flu which was why my muscles ached but I knew it wasn't that because the flu doesn't leave you crying in agony and unable to move. Their arguments for flu was:

You sound chesty and you're bringing up green sputum - Well duh, CF patients always do.
Your nose is bunged up - I'd just had surgery on it, so yes it would be bunged up.
We found a bug called Pseudomonas growing in your lungs - They didn't 'find' it, it's always been there since I was little and I've never been able to get rid of it.

I know doctors are amazing and clever and I'm grateful for all they do but sometimes I wish they realised that people with long-term health conditions are a lot savvier than the average patient when it comes to their own health because they're so used to hospitals and things. You're not supposed to look up things on the internet but I did google muscle pains after surgery and it said that if they give you a drug called scoline it can cause these pains, particularly in the stomach which was where mine hurt the most. It was only when I asked them if I'd been given that drug they saw that I had and realised that that was probably what was causing everything but by then it'd all stopped hurting as much. Then later on in the day my doctor who I see all the time came and agreed it was the drug and not flu which was good! Annoying though, because a reaction like that is rare and it all would've gone so smoothly if it wasn't for that. They wanted to keep me in over the weekend for tests, luckily for me (but sucks for him) my doctor was on call all weekend this morning he said I was allowed to escape today which was fab! I was gonna leave yesterday but my bloods came back all funny, I felt scared I had another infection and was gonna get ill again so I got quite upset. But it was just the op and meds that had caused them to go weird, they were fine again today now I'm home and resting and reunited with Freddydog.

There's not much I need to do, just nasal washes and I'm not allowed to blow my nose for a couple of weeks but that's it really. I've had no pain in my nose at all, I just feel a bit of pressure if I touch it but it's fine. I'm a little achy still and tired from staying in hospital and I'm still coughing up a little blood from my nose but other than that I'm all good! Just have to finish my IVs at home now. Glad to have finally got the op out the way!

Sorry this post was such a long 'un, but I thought I'd better include everything if it's to be of any use to anyone! Feel free to ask questions if you have any (but before you ask, no I don't look any different...still my butterz self!)



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57 comments:

  1. You are one brave lady missy. I hope your surgery helps with your CF. Xx

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  2. I love this type of post, Josie! Both interesting and educational (geeky but true!). It's nice to just read a personal and real post though about you because it gives more insight into your life :) also, is it just me but is the fact that your ward is called Mulberry a sign...? ;) xxx

    Sam | Samantha Betteridge

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  3. ninegrandstudent26 April 2015 at 20:41

    You sound like you recovered better than me - I had the same (plus widening of the sinuses and back nasal passages) in 2013. I have no real health problems other than recurring sinus issues, but this operation was horrendous. I bled too much during the procedure, reacted badly to the GA...and the pain afterwards was unreal. I was in bed for a good couple of weeks, and for a couple of months afterwards I was so wiped out. On the plus side though, I'm on my first sinus infection since the surgery as we type. Before I'd have been lucky to have one month infection free, so it's a lot better though I still get a lot of pressure pain.

    How did you find the pain after surgery? I've been told I'll probably need the sinus part every five or so years, so I'm terrified it will be as bad as before!

    NINEGRANDSTUDENT: A Student Lifestyle Blog

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  4. Oh Josie. You're such an inspiration. You seem to go through health drama after health drama but you keep on trooping! I wish you a speedy recovery. Thank goodness you know your own body and stuck up for yourself to those doctors!

    Tara x

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  5. You're such a strong girl for getting through your surgery! Especially having to go back to A&E! I really hope the rest of your recovery goes well, sending you a virtual hug <3

    Carolyn x
    Carolyn’s Simple Life

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  6. What an ordeal! Poor you having to go through the added trauma of the doctors already telling you what you already know and coming to the incorrect conclusion! and not having a bed or anything all night. Really hope this surgery helps your CF long term though and stops you from getting all the headaches etc. You're so brave xxx

    Ioanna | Hearting.co.uk

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  7. Aww so sorry how you feel better.
    www.rumelatheshopaholic.blogspot.com

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  8. Ohhh man! Best of luck to a full and speedy recovery dear!

    Tegan xx - Permanent Procrastination

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  9. I'm so relieved that the surgery went well. Hope you recover soon :)

    Dara | Hola Darla | @DarlaOct

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  10. You're so awesome Josie - you really are! You never complain and you just seem to take everything in your stride which is pretty outstanding if you ask me! I hope this surgery does help in the long run, I can imagine sinus pain is intense and annoying. Now, I just hope you don't get a cold because if you can't blow your nose that would be very awkward! xxx

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  11. I have s friend who's actually going to do the same procedure as yourself! Hope you're feeling a million times better <3 this was such an inspirational post, and it will help to ease my friend's mind too :) wish you get better very soon sweety!

    Serene xoxo

    http://www.imserenel.wordpress.com

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  12. I agree with the comment below, Josie. You're a brave chica, and have gone through so much. It's amazing when I read your CF posts how you've dealt with the whole thing. And also awesome that you're pro-active about everything. These doctors sometimes...I don't know...
    XOXO

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  13. Wow this sounds terrible, it's great that you've went through the surgery to get better but that period can be an awful experience and scary! tbh it's really difficult to find the right words to say but your very brave and I hope you feel much better soon, it will all be worth it xx

    www.krystelcouture.com

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  14. So brave, Hope you're feeling great in no time. :)
    I need to have a surgery too, but I'm a little scared of it.


    El | www.zekalin.com

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  15. Oh sweetie sound like an absolute 'mare! <3 glad to hear you're feeling better and home now though. And yay for cleared up lungs! :)


    I love reading your CF posts. It's not an illness I know anything about so it's really interesting for me! xxx

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  16. So glad to know everything went well Josie, with the exception of those doctors getting on your nerves! You're so brave and strong, I would probably freak out big time, I do that even before going to the dentist hehe. Hope you have a speedy recovery and hope that the surgery helps with your sinuses. xx


    Paula

    Thirteen Thoughts

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  17. Oh Josie you are such a brave and wonderful lady. I'm so pleased you're doing ok now but I really feel for you going through all that, sending lots of love and hugs your way xxx

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  18. ahh you're so brave going through all that, then have to get through A&E again and being told what you already know! Hope you're making a speedy recovery now, and hopefully the op will help with your CF xx

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  19. You're so brave!! :)

    sophie-said.blogspot.co.uk

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  20. You are very brave! I'd heard of CF before, but never knew much about it so this was quite interesting for me on a learning basis. It's always nice to read something realistic for a change, and I hope you feel better soon x


    www.sheintheknow.co.uk

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  21. I have to admit I didn't read this post, I am the most squeamish person ever so I'd probably faint. But I just wanted to say how brave you are and I am send you all the love in the world xxx

    Annabel ♥
    Mascara & Maltesers

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  22. A&E staff definitely should be paid millions, they work so hard. I hope you're doing well today lovely <3

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  23. Glad it went well, get well soon lovely!

    littleladyzahra.blogspot.co.uk

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  24. Ahh, that must have been so frustrating, esp when it seemed to be going so well to start off with! I'm glad the reaction to the drug is better now though. Your nose looks painful!


    Corinne x
    www.skinnedcartree.com

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  25. Shite, what an ordeal! I hope you recover really well. xxx

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  26. Bella Pummarola29 April 2015 at 00:05

    That sounds like a lot to go through, but it's good to hear that you're better now!

    Bella Pummarola

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  27. Samantha Mariko29 April 2015 at 00:47

    I'm glad the surgery went well! I guess it's a good thing to look up things on your own.. I do that a lot too >< Chocolate does wonders for the soul :) Please get better soon!
    www.samanthamariko.com

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  28. I am glad you braved the surgery hopefully in the long run it will make you feel so much better. The aching and A&E visit doesn't sound like fun. Sending get well wishes your way Lucy x

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  29. Thank you, I'm glad you find them informative! I know right? They're cheeky as well because they use the Mulberry logo on all their paperwork! x

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  30. I'm so sorry you had such a tough time! I'm hoping if you need another it'll go a lot better, lots of people who've had multiple sinus ops have all said the first one was painful but the others not so bad.


    The pain in my face isn't too bad, I feel like I've been punched in the face but compared to everything else it's ok! It's more complications from a drug they gave me during the op (it gave me temporary muscle damage which was no fun at all!) and the CF side of things playing up. x

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  31. The bed situation is scary, they're so low on staff too! Thank you x

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  32. Oh trust me, I do complain sometimes haha! Thank you x

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  33. Good luck to your friend! Thank you x

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  34. Thank you Emmy! I know, I don't want to look like I'm badmouthing them because 99% of the time they're amazing but they aren't always right! x

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  35. Thank you, good luck with your surgery! x

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  36. Thank you <3 I'm glad you find them useful, I'm never sure if I'm just rambling on about a load of nonsense haha! x

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  37. Thank you Paula! I'm still scared of the dentist though haha x

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  38. I'm not sure about that haha but thank you! x

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  39. Thank you! I'm glad you found it interesting, I'm always worried people will find CF stuff boring haha x

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  40. I don't blame you, things got grim in this post haha! Thank you x

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  41. Thank you! The pain's not too bad thankfully x

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  42. Thank you! Chocolate is the best medicine, I agree! x

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  43. I'm glad everything got sorted out eventually, I really hope you're feeling better soon! I always find these posts interesting (one of my friends from uni has CF and I'd like to think that reading your blog has helped me to be more understanding, plus it's good to be informed about it all) and I always admire the fact that you take everything in your stride and keep your chin up. Much love! xx

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