A Catch Up

What a rollercoaster month.

Although of course the highs outweigh the lows! I'll share them through some snapshots, as that's cuter. Let's start with the fun stuff...

As you can see, all the very best things! The wedding was sooo beautiful, it probably couldn't have been any lovelier. But in between all of that, this happened too.

An emergency bronchoscopy and biopsy, which is where they put a camera down your throat to check out what's going on in your lungs and they also snip out a tiny bit of them to test for rejection. This is a fairly standard procedure post transplant but I've had a bit of a chest infection and my lung function went from around 80% to 60% which is, you know, not fab. Although it's kinda nuts how my worst currently was my best back in the day when I was a kid! So I had to stay in for a few days and then I was allowed home to do IVs (which you can read about here!) Thank goodness my port is still working, at 16 years old it's well on its last legs but it's still pulling through for me - it's the real MVP! I was put on colistin and meropenem, a real delightful combo that makes you itchy, give you pins and needles all over, dries your skin out but at the same time gives you the worst breakouts and the greasiest hair, dodgy vision, bad dreams and knocks you out amongst other things. IVs are antibiotic drugs that you adminster into your bloodstream, in my case it was three times a day for two weeks. I've not had to do them for nearly two years, pre transplant they were a huge part of my life as I had to do them every three months and then for the last two years before I got my new lungs I was on them almost permanently. So I feel sooo lucky I've not had to do them for so long! I was struggling a bit with the side effects (I swear I never used to, transplant has weakened me haha!) which is why I've been pretty absent from the blog. I'm off them now,  but I'm not 100% so I have three weeks to get better or it's back for another bronch! In the meantime I'm trying to get back to normal so I'll hopefully be back on here writing nonsense as usual!

Tell me about you, how've you been?