CF | Annual Review

Rocking the hospital gown! With an orange lip of course ;)

So last week on Thursday I had my annual review at the CF Clinic, it happens yearly where you just have a bunch of tests including bloods, x-rays and ultrasounds. It's like when your car has an MOT I guess! I was supposed to have a DEXA scan too which checks your bones but it got cancelled so I have to go back in a month for that! I won't get the results until maybe the end of next month but I think everything will be ok. I also saw the physio and I was telling her how I think my breathing has gotten worse over the last year and how I get more tired etc but then I smashed last years record when I did the fitness test so I looked like a big fat liar haha! But she did believe me and was so lovely and helpful and also gave me some exercises because I've had a pain in my side ever since I got pneumonia last summer. I was stupid really, I definitely should have mentioned it before now! My dietician was happy too, I've managed to keep my weight up despite all the stressiness that's been going on lately. My lung function was 40% which isn't great but my lungs actually felt really good that day so I'm confused! To be honest I think some people get a little caught up with lung function numbers, to me I just base things on how I feel...sometimes I've gone in feeling like crap but had a high lung function and other days like this one it's been low despite me feeling great! All in all they were really happy with me, in fact I got told I was 'fabulous' *flips hair*

So obviously I had to pop into Primark and buy a couple of bits in celebration:

I also bought  a jacket from H&M which I'm sure you'll be seeing soon enough! Not that I should have bought anything because on Friday I finally quit my job. I feel super sad about it even though I know it was the best thing to do for my health. They were so lovely and sad to see me go, I almost wish they'd not cared then it would've been easier haha! They said if I want to go back I can and it may even be possible to get a transfer to a store a bit closer to home which would be good because I like the job and I like the actual company loads. I'm going to miss the people but there's no doubt I'll be back down Oxford Street shopping so I can always pop in and I can still go out for drinks and that! I can't believe I've actually left though, feels weird. I feel scared I won't find another but I'm sure I will! Even if I have to wait a couple of months which to be honest I think I'd rather because then I can concentrate on things at home. I'm lucky I don't have to work, it just means I have to cut down on the spending *sobsob* Oh, and as for my brother he is now off the intensive care ward, he's not on a regular one but more like one in between the two. He's still unwell and has a way to go but it's a step forward! After only a few weeks too! Very proud.

Josie x